For so many AMN and ALD patients, their disease symptoms are directly impacted when illness strikes. Adrenal insufficiencies like Addison’s Disease and Hypothyroidism often accompany AMN/ALD diagnoses,…… Read more “Illness and Adrenomyeloneuropathy”
Risks and Vulnerability
You are constantly torn between knowing that you have to move on with your life, and actually being ready to do it.
Leaping into Myself
New life mindset: do only what sets your heart on fire.
The Widow Cooties
Being around grieving people is uncomfortable, but being uncomfortable isn’t contagious, and neither is grief.
Pictures…of a life lived
Hearts are resilient muscles: they beat fast and slow; they stop and can be restarted; and they heal. There is room for both the lost and the living within them.
A One-Year Road Trip with no Map
Your grief journey is your own. There are no exit ramps and there are no short cuts, so navigate it however you see fit, because the journey is unique to all of us.
The Predictability of the Unpredictable
The only predictable factor in life is that life is unpredictable.
The Things They Leave Behind
“The things” are tangible proof our person was here with us, they left us, and they will always be present for us.
Adrenomyeloneuropathy (AMN) – A Grim Reaper of “Rare Diseases”
Knowing your time is limited can be both a curse and a blessing.
The Reality of Death
Even “expected” death is not the peaceful, quiet situation we often envision.
Grieve Forward 