For so many AMN and ALD patients, their disease symptoms are directly impacted when illness strikes. Adrenal insufficiencies like Addison’s Disease and Hypothyroidism often accompany AMN/ALD diagnoses,…… Read more “Illness and Adrenomyeloneuropathy”

Mark Schmorrow lost his battle with Adrenomyeloneuropathy on June 18, 2019. While he fought this disease passionately with every breath he took, he passed away at home with myself, his children and his pooch at his bedside.

While hospice care can feel like a death wish, it also provides many more services and supports that patients and their caregivers desperately need.